Latasha Gibson Proposal Research part 2

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Walden University *

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6301

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Sociology

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Jan 9, 2024

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Latasha Gibson Walden University SOCW 6301: Social Work Practice Research 1 Dr. Janella Melius, Ph.D., LCSW February 5, 2023

The study for my research will identify individuals living with dementia and their family caregivers' stressors and the burden they have faced with this will determine the population. In addition, in my population, the stress of caregiving is left empty; it can leave a person with a disadvantage, individual well-being, family ties, and overall individual mindset, in the long run leading to burnout, depression, and physical exhaustion. Situations like this leave the primary caregivers and the person with dementia to experience distress. For my research, the best study is non-probability sampling. Non-Probability sampling “is not possible to calculate the likelihood that a given person or element will be selected” Yegidis, B. L. et al. (2018). The best sampling technique would be Snowball sampling. Snowballing within my research is based on where applicants are asked voluntarily to partake in a research study based on an interview question based on their everyday involvement with someone with dementia. The questions will be based on caregivers for a loved one with dementia in the African American public and how the impact of limited family support and grief and burdens they may feel on a daily. “Caregiving experiences are also understood through changes in family structure that are impacting the availability of caregivers for older adults with dementia. A sharp decline in the ratio of caregivers to older adults of 7:1 in 2010 to an estimated 4:1 in 2030 in the United States will result in higher-intensity caregiving among family caregivers (Redfoot, Feinberg, & Houser, 2013), which may result in more care burden for family caregivers of people with dementia”. I will collect data for my study based on interviews that will take place with African American caregivers caring for a mother/father with dementia. The lived involvements of African American caregivers who care for someone with dementia can be intolerable and a tremendously emotional to deal with. Leaving caregivers facing higher levels of strain, fighting with

themselves, and undergoing changes in their relationships with the individual they are caring for and others. However, the state of mind of satisfaction is satisfying for this person who rely on their beliefs and spiritual needs. “Among Black Americans ages 70 and older, 21.3% are living with Dementia”. Ethical and cultural considerations impact every stage of the research process— from problem identification to recruitment of participants to dissemination of findings. One of the reasons for debate about ethical issues is because ethics are opinions informed by people's values, and people have different values. Ethical challenges can occur in the context of complex decision-making and the situation, the lack of decision-making made by the caregiver. I consider the ethical issues related to the population that I chose. Dementia affects the capability of the mind to make decisions and recollect information, and they often present numerous ethical dilemmas to caregivers and family members. Caregivers must balance the needs of the individuals and their life changes. Suppose the person with dementia is no longer able to express their own will. In that case, decision- makers must separately put their own needs and desires and carry out what they believe the individual with dementia would do if they were able to make their own decision. The NASW Code of Ethics states that a social worker should comply with 1.14 Clients Who Lack Decision- Making Capacity. When social workers act on behalf of clients who lack the capacity to make informed decisions, social workers should take reasonable steps to safeguard the interests and rights of those clients. African American dementia is exceptional for individuals that are on the rise. Resources in the community can be a helpful service for caregivers to aided in the home for African American dementia caregivers and individuals with dementia. Support groups on stress and how to care for someone with dementia can be very meaningful to support the individuals. My understanding of

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research has deepened by ensuring that I have valid information to research. It has also given me more knowledge on researching and how individuals test their hypotheses. Over a year ago, I watched my grandmother health decline with this disease of Dementia. This has been one of the toughest responsibilities in my life to complete. I have dedicated this research to my beloved grandmother Annie Lee Shannon. This research I did was more personal because I am a caregiver that helps my grandmother, who is 84 years of age, with Dementia between me; my mother and I are her primary caregiver. Somedays are good, and some days are bad, but we make sure to keep going no matter how stressed or the limited family support we have. Me and my mother both work full-time jobs. I wish my other family members would take the time to help with her care. Yes, the research is more valuable now that I have built my proposal. In addition, this process has not been easy due to the lack of knowledge I needed to have on the research process. This process has taught me about different problem statements, and forming a research question. The whole process has taught me on how to conduct and work on research and how to do it. If I were to conduct this study on African Americans caring for a loved one with dementia, I would expect the result to be good and that individuals would participate in my study for provided the data that I need. If the data did not align with my expectations, I would go back to and look at my interview question and my methodology approach.

References Alzheimer’s Association. (2023). African Americans and Alzheimer’s disease: The silent epidemic. Alzheimer’s Disease international world Alzheimer report. Epps, F., Alexander, K., Brewster, G. S., Parker, L. J., Chester, M., Tomlinson, A., Adkins, A., Zingg, S., & Thornton, J. (2020). Promoting dementia awareness in African‐American faith communities. Public Health Nursing, 37(5), 715–721. Jennings LA, Palimaru A, Corona MG, Cagigas XE, Ramirez KD, Zhao T, Hays RD, Wenger NS, Reuben DB. Patient and caregiver goals for dementia care. Qual Life Res. 2017 Mar;26(3):685-693. doi: 10.1007/s11136-016-1471-7. Epub 2016 D Peggye Dilworth-Anderson, PhD, Heehyul Moon, PhD, María P Aranda, PhD, Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality, The Gerontologist, Volume 60, Issue 5, August 2020, Pages 797–805. Van der Lee, J., Bakker, T. J. E. M., Duivenvoorden, H. J., & Dröes, R.-M. (2017). Do determinants of burden and emotional distress in dementia caregivers change over time? Aging & Mental Health, 21(3), 232–240.

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