thesis proposal

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Nov 24, 2024

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1 Maisa Lopes Dr.Kim Assignment 4 10/08/2023 Thesis Proposal: Cancer Survivorship and Quality of Life Introduction Cancer survivorship is a multifaceted journey encompassing physical, psychological, and social challenges individuals face during and after cancer treatment. Understanding and addressing the diverse aspects of cancer survivorship is essential to enhance their overall quality of life. This thesis proposal aims to investigate cancer survivors' experiences, identify interventions and support systems, and explore the role of healthcare systems in providing comprehensive care. The ultimate goal is to empower cancer survivors to thrive in adversity and receive the best possible care and support throughout their journey. Objectives 1. To explore the physical, psychological, and social challenges faced by cancer survivors. 2. To identify effective interventions and support systems to enhance the quality of life for cancer survivors. 3. To assess the role of healthcare systems in providing comprehensive care and support during survivorship. 4. To investigate the evolving needs of cancer survivors as they transition from active treatment to long-term survivorship care. 5. To examine the impact of age, race, and comorbid conditions on cancer survivorship experiences and quality of life. Description of the Senior Project Cancer survivorship is a critical and evolving aspect of healthcare that has garnered increased

2 attention in recent years. As advances in medical treatment continue to improve cancer survival rates, it becomes essential to address the holistic well-being and quality of life of cancer survivors. My senior project will delve into the following specific questions: ● How does cancer survivorship impact the physical, psychological, and emotional well- being of individuals? ● What are the key factors influencing the quality of life for cancer survivors? ● What support systems and interventions can be implemented to enhance the overall quality of life for cancer survivors? ● How do cultural and societal factors affect the experiences and outcomes of cancer survivors? This project aims to provide a comprehensive understanding of the challenges and opportunities related to cancer survivorship, exploring the physical, psychological, and social dimensions of quality of life in the context of cancer survivors. By addressing these questions, I hope to contribute to the growing body of knowledge on cancer survivorship and inform strategies to enhance the quality of life for cancer survivors. Project's Relation to Personal and Professional Goals My interest in cancer survivorship and quality of life is deeply rooted in both my personal experiences and my professional aspirations. Having witnessed family members and close friends battle cancer, I understand the profound impact it has on individuals and their loved ones. This personal connection drives my passion for making a meaningful contribution to the field of biology research. On a professional level, this project aligns with my long-term goal of pursuing a career in the research field. I aspire to work in lab organizations and institutions to discover cures, develop policies, programs, and interventions that improve the well-being of cancer survivors, and promote patient-centered care. Engaging in research on cancer survivorship will equip me with the knowledge and insights necessary to drive positive changes in the healthcare sector.

3 Speculation on Obstacles and Challenges Undertaking a senior project on cancer survivorship and quality of life poses several potential challenges and obstacles. These include: ● Access to Data: Accessing relevant and comprehensive data on cancer survivors and their quality of life may be challenging. Data privacy and ethical considerations will need to be carefully addressed. ● Time Management: Senior projects often come with tight deadlines, and balancing academic commitments, part-time work, and personal life will be demanding. Effective time management will be crucial. ● Research Methodology: Selecting appropriate research methods and tools to collect and analyze data on a sensitive and complex subject like cancer survivorship can be challenging. I may need to seek guidance from mentors and experts in the field. ● Ethical Considerations: Ensuring the project is conducted with the utmost ethical standards and sensitivity to the participants will be a top priority. Obtaining informed consent and maintaining the privacy and dignity of participants will be essential. My senior project on "Cancer Survivorship and Quality of Life" is a significant undertaking that aligns with my personal and professional goals. While I anticipate various challenges throughout the process, I am committed to addressing them with diligence, ethics, and a strong sense of purpose. I am excited about the opportunity to contribute to the field of cancer survivorship and hope to make a positive impact on the well-being of cancer survivors Literature Review Key Concepts 1. Multifaceted Cancer Survivorship - The cancer survivorship journey encompasses physical, psychological, and social challenges.

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4 - Understanding the diverse aspects of survivorship is essential for comprehensive care. 2. Interventions and Support - Effective interventions and support systems are critical for enhancing the quality of life for cancer survivors. - Empowering survivors to actively manage their care contributes to well-being. 3. Role of Healthcare Systems - Healthcare systems are crucial in providing comprehensive care and support to cancer survivors. - A smooth transition from active treatment to survivorship care is essential. 4. Evolving Needs of Survivors - The needs of cancer survivors evolve as they transition from active treatment to long-term survivorship care. - Ongoing support is necessary to address physical, emotional, and practical concerns. Relevant Studies - Stanton et al. (2005): Emphasize the importance of interventions and support systems for psychological adjustment and coping strategies in cancer survivors. - Hewitt et al. (2006): Highlight the challenges during the transition from active treatment to survivorship care and the need for improved healthcare strategies. - Rowland et al. (2005): Provides an overview of the historical evolution of survivorship research and the importance of addressing physical, psychological, and social well-being. - Ferrell & Dow (1997): Delves into the long-term quality of life of cancer survivors and the significance of comprehensive survivorship care. - Bultz & Carlson (2006): Advocates for recognizing emotional distress as a vital aspect of cancer care and proactively addressing psychological well-being. - Ganz (2009): Explores the concept of quality of life at every stage of breast cancer care, emphasizing interventions for physical, emotional, and social well-being.

5 - Mullan (1985): Offers a unique perspective on the challenges and coping strategies of cancer survivors from a physician's reflection. - Armes et al. (2009): Examines the supportive care needs of cancer survivors as they transition beyond the end of treatment, emphasizing evolving needs. - Harrington et al. (2010): Explores the adaptation process of young cancer survivors within a social ecology framework, considering the social environment. - Bellizzi et al. (2012): Examines the intersection of age and race in cancer survivorship, highlighting disparities in health-related quality of life. - Husson et al. (2017): Introduce the concept of empowerment in breast cancer survivorship and validate a questionnaire to assess it. - Glaser et al. (2016): Investigate the impact of the survivorship era on older adults, focusing on the relationship between cancer survivorship and isolation and depression. - Nekhlyudov & Ganz (2007): Discuss barriers to accessing comprehensive survivorship care and propose strategies to overcome obstacles. - Husson et al. (2017): Explores the social functioning of adolescents and young adults who have survived cancer, emphasizing the need for long-term support. - Campbell-Enns & Woodgate (2016): Outlines a systematic review protocol to examine the psychosocial experiences of women with breast cancer across different life stages. - Stergiou-Kita et al. (2017): Explores the work experiences of cancer survivors, developing a conceptual framework to understand the complexities of returning to work. - Meeske et al. (2001): Investigates posttraumatic stress, quality of life, and psychological distress in young adult survivors of childhood cancer. - Kvale et al. (2010): Examines the intersection of binge eating disorder and breast cancer survivorship, emphasizing the importance of addressing comorbid conditions. Research Methodology - Qualitative interviews and surveys with cancer survivors to understand their experiences. - Analysis of medical records and healthcare system data to assess the role of healthcare systems. - Literature review and meta-analysis to examine the impact of age, race, and comorbid conditions on cancer survivorship.

6 - Collaboration with support organizations and healthcare providers for a comprehensive understanding. Conclusion "Cancer Survivorship and Quality of Life" is a vital research initiative that aims to enhance the quality of life for cancer survivors by understanding their diverse challenges, identifying effective interventions and support systems, and assessing the role of healthcare systems in providing comprehensive care. The study acknowledges the evolving needs of survivors and the impact of age, race, and comorbid conditions, ensuring a holistic approach to improving survivorship experiences. Relevant Summaries Summary 1: Stanton et al. (2005) - Emphasizing the Importance of Interventions and Support Systems for Psychological Adjustment and Coping Strategies in Cancer Survivors Stanton et al.'s 2005 paper, "Emphasizing the Importance of Interventions and Support Systems for Psychological Adjustment and Coping Strategies in Cancer Survivors," delves into the multifaceted challenges that cancer survivors face, extending well beyond their medical treatment. The paper brings to light the critical role that interventions and support systems play in enhancing the psychological adjustment and coping strategies of individuals navigating the often arduous journey of cancer survivorship. The authors highlight the fundamental premise that cancer survivorship is a complex and dynamic process, not limited to physical health alone. It encompasses psychological and emotional dimensions, which can be profoundly affected by the cancer experience. The paper emphasizes that effective interventions and support systems are pivotal in helping survivors navigate the emotional terrain that typically accompanies a cancer diagnosis. Within the paper, various psychological interventions are scrutinized, including counseling, psychotherapy, and support groups. Stanton et al. rigorously assess the impact of

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7 these interventions on the quality of life for cancer survivors, demonstrating the potential for improving their overall well-being. The authors underscore the critical importance of recognizing and addressing issues such as anxiety, depression, and post-traumatic stress, as these psychological challenges can have a significant impact on the survivor's holistic quality of life. By emphasizing the significance of addressing the psychological aspects of cancer survivorship, Stanton et al.'s paper contributes significantly to the growing body of knowledge on how interventions and support systems can positively influence the well-being of cancer survivors. This critical perspective is essential for healthcare providers, policymakers, and support organizations to tailor their efforts to the complex needs of this population, ultimately fostering improved quality of life and emotional resilience during the survivorship journey. Summary 2: Hewitt et al. (2006) - Highlighting Challenges during the Transition from Active Treatment to Survivorship Care and the Need for Improved Healthcare Strategies Hewitt et al.'s 2006 paper, "Highlighting Challenges during the Transition from Active Treatment to Survivorship Care and the Need for Improved Healthcare Strategies," addresses a pivotal phase in the cancer journey—the transition from intensive active treatment to survivorship care. This period is often marked by unique challenges that warrant specialized attention. The authors emphasize the need for enhanced healthcare strategies that cater to the evolving needs of cancer survivors during this critical transition. The paper illuminates the various challenges that cancer survivors commonly face during this phase, underscoring the significance of recognizing and addressing these issues. Among the challenges discussed are the management of long-term side effects, the psychological distress that can follow the completion of treatment, and the process of reintegrating into daily life as a survivor. These challenges can often be emotionally and physically demanding for individuals who have completed their treatment, requiring tailored support and guidance. Hewitt et al. advocate for the development and implementation of survivorship care plans. These plans are outlined as essential tools in providing cancer survivors with comprehensive information, a roadmap for long-term follow-up, and the necessary support they require to enhance their quality of life. These plans encompass various aspects of care, including

8 monitoring for cancer recurrence, addressing long-term treatment-related side effects, and offering guidance on healthy lifestyle choices. This paper offers critical insights into the intricacies of transitioning from active cancer treatment to survivorship. Highlighting the challenges faced during this transition and advocating for the development of survivorship care plans, underscores the need for tailored healthcare strategies. These strategies aim to optimize the quality of life for cancer survivors, addressing the physical, emotional, and informational needs that are integral to their post-treatment well-being. Recognizing the unique aspects of survivorship care can contribute to a smoother and more fulfilling journey for those who have conquered cancer. Summary 3: Rowland et al. (2005) - Providing an Overview of the Historical Evolution of Survivorship Research and the Importance of Addressing Physical, Psychological, and Social Well-being Rowland et al.'s 2005 paper, "Providing an Overview of the Historical Evolution of Survivorship Research and the Importance of Addressing Physical, Psychological, and Social Well-being," offers an enlightening historical perspective on the concept of cancer survivorship and its transformation over time. The authors draw attention to the shift from an exclusive focus on disease-free survival to a more comprehensive view that encompasses the overall quality of life for cancer survivors. The paper serves as a reminder that the perception of cancer survivorship has evolved considerably. Historically, the main goal was often viewed as survival and remission, with less emphasis on the holistic well-being of survivors post-treatment. However, as the field of survivorship research has grown, a patient-centered approach has emerged. This approach recognizes that cancer survivors may face ongoing challenges related to physical health, psychological well-being, and social interactions, long after their treatment has ended. Rowland et al. emphasize the necessity of adopting this multidimensional perspective on survivorship care. They highlight that comprehensive survivorship care should address not only the medical aspects but also the psychological and social dimensions of survivorship. This shift in focus allows healthcare providers to better meet the needs of cancer survivors, thereby

9 improving their overall quality of life. The paper's historical context provides valuable insights into the changing landscape of survivorship care and the evolving understanding of what it means to be a cancer survivor. It underscores the importance of holistic approaches in supporting the well-being of cancer survivors, emphasizing that survivorship care should extend beyond medical monitoring to address the physical, psychological, and social aspects that impact the overall quality of life for individuals who have triumphed over cancer.

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