HS300 Discussion 4

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Northern Arizona University *

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300

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Medicine

Date

Dec 6, 2023

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docx

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2

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First go to https://www.youtube.com/watch?v=qr1TM6A7hac then https://www.washingtonpost.com/local/on-the-eve-of-an-oprah-movie-about-henrietta- lacks-an-ugly-feud-consumes-the-family/2017/03/28/d33d3418-1248-11e7-ada0- 1489b735b3a3_story.html Second post a thoughtful response to the following questions. 1. Henrietta signed a consent form that said, “I hereby give consent to the staff of The Johns Hopkins Hospital to perform any operative procedures and under any anaesthetic either local or general that they may deem necessary in the proper surgical care and treatment of: ________” . Based on this statement, do you believe TeLinde and Gey had the right to obtain a sample from her cervix to use in their research? Based on this statement only, I do not believe they had the right to obtain a sample from her service. This is because the statement only says that Henrietta Lacks consents to surgery procedures and anesthesia, nothing in the statements that says about taking a sample. The doctors should have been more specific and informed Henrietta about what example she would be donating. 2. What information would they have had to give her for Henrietta to have given informed consent? The information they would have to give to be given informed consent is exactly what she is donating, what her donating is going to benefit others, and at least receive some ethical compensation (Klitzman, 2022). More specifically, “be told their specimens and information, if no longer clearly associated with them, may be used for other [unspecified] research without their permission, be informed whether the research has commercial intent notified whether participants’ results will be returned to them and under what circumstances” (Billauer, 2021). . 3. Do you think Henrietta would have given explicit consent to have a tissue sample used in medical research if she had been given all the information? Yes, in the video, we had to see her family explain that Lacks would have been happy to donate the cells if she knew that she was going to be helping hundreds of men and women (Minute 38). They would at least like to know what her cells were being used for. 4. Should the family be financially compensated for the HeLa cells? What about the family feud surrounding this? I do believe the family should be compensated in some way because the hospital Lacks was admitted in, rarely allowed African American patients and the treatments and health insurance they were unable to afford. The family believes they should be compensated for the racism they endured for not being able to afford the health expenses and how unknowlying Lacks made such an impact on the medical industry (Billauer, 2021). I believe that the establishment made so much money and credibility for something that was taken from Henrietta Lacks. Billauer, B. P. (2021, October 4). Henrietta Lacks is dead. her cells are immortal. so, why do her kids want to Sue? American Council on Science and Health. Retrieved April 19, 2023, from
https://www.acsh.org/news/2021/10/04/henrietta-lacks-dead-her-cells-are-immortal-so-why-do- her-kids-want-sue-15844 Butanis, B. (2022, February 18). The Legacy of Henrietta Lacks . Johns Hopkins Medicine, based in Baltimore, Maryland. Retrieved April 19, 2023, from https://www.hopkinsmedicine.org/henriettalacks/ Klitzman. (2022). Henrietta Lacks’ family’s lawsuits: ethical questions and solutions. Trends in Biotechnology (Regular Ed.), 40(7), 769–772. https://doi.org/10.1016/j.tibtech.2022.02.009 https://www.youtube.com/watch?v=qr1TM6A7hac Hi Amanda, I completely agree that Henrietta Lacks was taken advantage of. According to the common rule the patient should "be told their specimens and information, if no longer clearly associated with them, may be used for other [unspecified] research without their permission, and be informed whether the research has commercial intent notified whether participants’ results will be returned to them and under what circumstances (Billauer, 2021). She should have been told more specifically what exactly she is donating and how it could be beneficial to other medical cases. I found it unbelievable how the establishment made so much money and credibility and the family had no knowledge. And to know through a news post, it is not a way to find out. Hi Bryanna, I completely agree with you Henrietta should have more specifically informed, and like the Youtube video we watched the speaker stated that the Lacks family came out and explain that Lacks would have been happy to donate the cells if she knew that she was going to be helping hundreds of men and women. The family has also stated they feel like they were lied to and taken advantage of (Klitzman, 2021). Also, I don't really agree with the family wanting to be in the spotlight. I think the family is hurt that the establishment, the doctors, and researchers kept such a secret from them. And they also did not know how much of an impact their loved one made in the world.
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