Data Stewardship Standards and Guidelines

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Grand Canyon University *

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Feb 20, 2024

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1 Data Stewardship Standards and Guidelines Yasmine Kanan Bachelor’s in healthcare administration, Grand Canyon University HCA 360 Professor Hayes
2 Data Stewardship Standards The American Health Information Management Association, otherwise known as AHIMA, is a professional association for health professionals that are involved in the health information management that is required to delivery quality health to patients and to the public. The AHIMA has worked with other public health agencies to create data standards and also works with the Public Health Data Standards Consortium (PHDSC) which has provided opportunities to advance health IT data standards meanwhile strengthening the infrastructure of health information to cohesively pair up data standards for clinic and public health (Tan& Olla, 2021). The goal of both clinical and public data standards, the differences and similarities between clinical and public health data usage, and a proposal for new data stewardship standards and guidelines, an action plan that supports the proposal, how it will affect public health and health professionals along with how the partnership will strengthen the infrastructure of health information systems and technology. Goal for the Alignment of Both Clinical and Public Health Standards The collaboration between clinical and public health is imperative for the future of health informatics places critical demand on public health to focus on data (Tan& Olla, 2021). Health informatics research relies on transforming clinical data information which comes from clinical providers sharing patient data with public health agencies (Tan& Olla, 2021). All in all, if clinical and public data standards are aligned. A coherent the knowledge is widened from the individual patient level to improve population health (Tan& Olla,2021). Clinical and public health are recognized to be a structured and systematic collaboration and coordination between their advantages. Public health and clinical health professionals work together to optimize individual population health in areas like health promotion and disease surveillance, prevention,
3 and control. For example, during the pandemic, the development of certain strategies like testing, mathematical projection of cases, hospitalizations and deaths that affect both population health, and access to clinical and hospital services (Choi, King, & Graham, 2022). Both clinical and public health provide solutions. Differences Between Clinical and Public Health Data Use Clinical data use is an important resource for most health and medical research where it is either collected during ongoing patient care or as a clinical trial program. There are many different types of clinical date use such as electronic health records, administrative data, claims data, patient and disease registries, health surveys and clinicals trial data. Public health data use is known as a patient’s healthcare provider who collect information, or data, to be able to make suggestions and recommendation on how to be treated. Government and health organizations also require data to find how to reduce illness and prevent disease in communities. Certain data form individuals can be given as access to public organizations to see what solutions can be made to improve public health in general. Some examples include demographic information, morbidity, mortality, and environmental exposures. Health departments and organizations are responsible for providing the best care in public health and to get their data they must have access to laboratories, healthcare providers and hospital records, national surveys, and disease registries. Proposal for Data Stewardship A heath data stewardship has a responsibility and guided by principles and practices to value patients and ensure the appropriate use of data resulting from patients’ personal health information. This is important for data collection, viewing, storage, exchange, aggregation, and analysis which supports patient quality care. It is important because it has provided quick access
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4 to electronic health data, growing recognition of the value behind EHRs, and improving health care and population health. Along with the acceleration in the use of information and technology to provide awareness and risks that come with wrong use of health data. To prevent these issues, it is imperative to have the right program and approach and some practices that would be put in place for my new proposal will include ensuring the right leaders having essential practices an principles for health data stewardship. This would include transparency about the use an identification behind the purpose of data use with patients. As well as the participation of all individuals including patients and other healthcare professionals, security safeguards and controls protecting these EHRs, data quality which would include integrity accuracy, timeliness, and completeness. However, the new proposal would limit on use, disclosure, and retention that cause oversight of data uses, accountability and enforcement. Plan for New Proposal Action Health information technology has immense potential to help improve quality care and the affordability for patients, it also has the potential to reduce medical errors, health disparities, improve health population health, increase prevention programs with community resources and continue to improve care in public health. To ensure that the correct steps and processes are being taken I would ensure that all healthcare professionals are being trained properly which would include a new hire training, an exam and practice run before being put out onto the field, along with a buddy system while they are taking the proper steps in data stewardship. In addition, once leadership and staff are properly trained, they will also be getting semiannual audit in the data submitted along with visits while they are caring for patients. This will ensure that the right steps are being taken and will assist in the right quality care along with the improvement of public health for the future. Patients, ensures, healthcare professionals, and
5 government agencies will have access to the data in case of needed access to improve public health, however there will be a strong and reliable security protection to gain access for the safety of the patient. It will be collected and stored in a high security system where only certain personnel have access, somewhat of a drive and collected only by the right trained team. This proposal is designed to protect the rights and privacy of patients whose data are involved and to promise the quality and integrity of the data their uses. The Effect on Patients This collaboration will benefit patients and the community because it will not only provide quality care but having records of certain disease and illnesses in a certain community will assist healthcare professionals research the current health concerns and allow them to help prevent diseases in the community. It also gives the individual their rights such as access to their health records, transparency for the individual about the use of their data, and participation and consent for the use of their data. References Choi BCK, King AS, Graham K, Bilotta R, Selby P, Harvey BJ, Gupta N, Morris SK, Young E, Buklis P, Reynolds DL, Rachlis B, Upshur R. Clinical public health: harnessing the best of both worlds in sickness and in health. Health Promot Chronic Dis Prev Can. 2022 Oct;42(10):440-444. doi: 10.24095/hpcdp.42.10.03. PMID: 36223159; PMCID: PMC9584176. Tan, J. (with Olla, P. & Tan, J.) (2021).  Adaptive health management information systems: Concepts, cases, and practical applications  (4th ed.). Burlington, MA: Jones & Bartlett Learning. ISBN-13: 9781284153897
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