Discussion 2
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Group Discussion 2 – Global Healthcare
1. When Henrietta Lacks’ tumor was harvested and distributed, what relevant recommendations of the Belmont Report were followed or not followed?
In the Belmont Report, “Respect for Person” is the idea of informed consent, this was not upheld
when Henrietta Lacks’ tumor was harvested. Informed consent is defined as “the process in which a health care provider educates a patient about the risks, benefits, and alternatives of a given procedure or intervention” (National Institutes of Health). The Belmont Report says that addressing informed consent to a patient is the act of showing the most basic respect towards a person. However, in Henrietta Lacks’ case, this act was completely ignored as her tumor was harvested and used for general research (Johns Hopkins Medicine). The idea of “Beneficence” discussed in the Bellmont Report was also ignored when it came to Henrietta Lacks’ case and because the doctors took the tumor cells while she was under anesthesia, no physical harm was caused but her family was economically harmed. Her family saw no compensation for the cells used in general research even though they were sold for large sums of money. Frequently Asked Questions
, www.hopkinsmedicine.org/henrietta-lacks/frequently-asked-
questions#:~:text=What%20happened%20to%20Henrietta%20Lacks,Federal%20law
%20requires%20informed%20consent. Accessed 11 Oct. 2023. Informed Consent - Statpearls - NCBI Bookshelf
, www.ncbi.nlm.nih.gov/books/NBK430827/. Accessed 11 Oct. 2023. 2. Were Henrietta Lacks’ rights violated? If so, which ones? (Use the various international covenants we discussed on Monday to get some ideas for potential rights, but you are not limited
to those).
Henrietta Lacks’ rights were violated during this process. Her right to be secure in her own body was taken by the act of the doctors not getting her consent and she was not compensated for her most generous donation even though it was unknowingly made. Her confidentiality was violated because her medical records were being shared all over the medical field without her consent. 3. If you were someone at Johns Hopkins today working to compensate the family for not receiving any credit for the Lacks' contributions, what types of compensation would you consider? (Hint: money is not the only form of compensation).
If I were a member of the Johns Hopkins administration team, I would ensure that not only did Henrietta Lacks and her family get compensation in the form of money but that she also got the recognition of helping make great medical advancements. Policies could be made in her name to ensure that this never happens to another individual in the future. 4. How would you make the decision – i.e. what stakeholders do you take into account?
The decision should be made by Johns Hopkins directors and high-ranking medical professionals
and they should consider the mental effect this whole situation had on Henrietta Lacks and her family.
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